I’m still alive. (Last updated 2025-04-28)
(Edited to add: Sorry, too long of a post here. I didn’t bother to renew my domain this year)
A timely piece I can relate to. currently starting my second week in a (US) hospital oncology ward after my 11th cycle of chemo. I was first diagnosed with stage iv colon cancer and after chemo, surgery, resections and stubbornness was NED from 2018 to 2025. The return is inoperable and I was given “six months to a year”.
I asked if I’d be in pain when death came, and he said that I wouldn’t likely be - it would just be feeling more and more tired. That’s basically what’s been happening.
The chemo itself hasn’t given me direct side effects like skin lesions or mouth sores, nor much nausea. The secondary effects on my kidneys (which were already doing poorly before this started) and liver (cirrhosis) plus the metastases in lymph nodes and lung leads to edema. Diuretics helped but flushed out my potassium, so there several months where they trying to balance those electrolytes.
Anyway, a lot of my swelling was reduced (and they took 4L from two rounds of draining my lungs) but for some ungodly reason my scrotal sack decided it wanted to play too, and became the size and consistency of one of those half size basketballs you can win at fairs. it’s so bad that I actually requested a catheter. The swelling makes walking or anything else really painful.
The oncology wing I’m in doesn’t seem soaked in the kind of depressing, institutional green malaise of slightly older hospitals but it isn’t a “nice place” to die (I don’t expect to do that this visit in any case). The older woman (70?) two doors down though - seems to be in constant pain and in and out of lucidity, shouting at everyone. Usually a phrase gets stuck on repeat for a few hours - the most heartbreaking was “mommy get my mommy I’m sorry mommy I’m a bad girl mommy stop it” yelled loudly for hours.
This is a generic hospital though. Memorial Sloan-Kettering in NYC has a patient day lounge and lots of projects for child patients and patients families. Still not even approaching the quality described
Sorry, rambling. Probably my way of compartmentalizing the anxiety.
The other thing I wanted to say is that I really liked Christopher Hitchens “Mortality” and that Terry Pratchett’s very relatable death character shows up in all of his books. My favorite quote is from “Small Gods” as Death comes for the protagonist at the very end:
> “Ah. There really is a desert. Does everyone get this?” said Brutha. WHO KNOWS? “And what is at the end of the desert?” JUDGMENT. Brutha considered this. “Which end?” Death grinned and stepped aside.
Maybe I’m not afraid of death because as a devout atheist - well yea, we all get to do that at some point.
The only reason I disagree is that L&L jumps in with some very well established characters that had been built up earlier. But I do love his (historically accurate by lore?) description of elves. He put a lot of research into re-establishing the myths and lore of his little corner of the world.
(Along those lines I would also recommend Susanna Clarke’s “Jonathan Strange & Mr Norell” which builds its own parallel history set in the early 1800s Britain, with Fairies taking the same role as elves in discworld.
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